I wrote the above last night, but then I had to go because Jude was having issues. So I will finish this blog up today. Jude did pretty well with the throw up last night he got me, the couch, the blanket, and more before he was done, shoo! On top of that our dog was acting very sick, but I have narrowed his issues down to anxiety. I am not sure why I was so emotional last night, but I was. I was crying at everything, it was like I had the baby blues all over again. Mike would talk to me about Jude's situation, and I would cry! I would see a pampers commercial, and I would cry. It was borderline ridiculous, and I am just moody. Actually, I am just angry! Mike said that for once he is up, and I am down. He explained he sees this as a new beginning, and something to keep Jude here longer. I see all this as a ticking time bomb, but I will work past that, I always do.
So Mike is going to request a new suck swallow test after the NG tube is out. Although, he said that the nurses had assured him Jude was relaxed during this past test. I could be wrong, but I believe the constant seizure activity has caused the aspiration. I think Jude's body has forgotten how to eat correctly. I did have to tell you one thing we have noticed that shows proper brain activity. Jude has learned to reach up, and try to pull the NG tube out of his nose. He is also bringing his hands to his mouth, and sucking on his fingers. I think he misses his bottle. Judes cough is still very prominent, and he felt a bit feverish again this morning. I do believe the antibiotic is wiping out the double pneumonia, but the viral portion is lingering. Jude also keeps sneezing, but I think that's just the tube. I told Mike it's probably like having a cutip constantly rubbing your nose, which makes you want to sneeze. I want to sneeze just saying that.
So I got up TWELVE times with the little booger last night. He would twist his body around, and somehow get his face backwards on the padding of his bed. I would have to turn him around, straighten his legs, and cover him back up. We have him on the wedge, with the boppy around his butt, and his hands covered so he doesn't pull the tube. He is a wiggle worm though, and finds his way out of our make shift restraint system. Mike had stayed up after Jude's last feed listening for Jude in case he threw up. Mike finally came to bed about two am, and that is when I took over thus explaining my twelve trips to his bed. About six am Mike woke back up, and took over with Jude, and at that point the boy was wide awake in his bed. Our conversation went something like this.
Mike "He is going to kill us I think"
Mike: "It's like we are getting enough sleep so we don't go crazy, but our bodies hurt"
Mike/Me: "Little stinker!"
The nurse is not there today, so it's Mike's first day alone with everything. We should have her back tomorrow for awhile. My aunt is going over to visit Mike, and his parents are stopping by. Before I left today he said, "Babe, I promise not to call screaming at you today because I am frustrated". awwww!
Emily seems to be handling things pretty well. She has been a bit more distant from Jude, I think this all shook her up a bit. Although, last night after he threw up, and we removed the tape, she got down to Jude's level, and helped console him. Poor Emily has had hours of homework every night. Last night she was up until 11 finishing her homework for today. I don't understand why they expect kids to go to school for 8-9 hours a day, and then send them home with 2-3 hours of homework. It just makes no sense!