Thursday, April 27, 2017

The Follow Up To Yesterday's Blog.

My blog I posted yesterday seemed to incite two different reactions from people. On one hand people were highly concerned about my mental stability while another side completely related and loved the post. I shared the post in my loss forum and the response has been amazing from people. The blog has received almost 3000 views and hundreds of shares in 24 hours. I have received emails, posts, and private messages thanking me for posting the raw truth of how gritty grief can be. So I thank those that took the time to reach out and letting me know the blog helped. 

I also thank those that are highly concerned and can only tell you that this is how it is. I don't mince words or emotions and I never have. I feel when we cover up our emotional turmoil or struggles we do an injustice to those that may travel our path someday. I think people can become proficient at wearing a mask each day to disguise their true feelings. When you peel back that mask you still find tears and only time will help dry those tears up. I read a quote today that said, "It's difficult to accept death in this society because it's unfamiliar. Despite the fact it happens all the time - We never see it." Oh man that rang true to me and I think it can also apply to many aspects of life not just death. Many times we as humans just don't see the struggle someone may be facing and we don't want to see it. Why would we want to subject ourselves to something so painful? I think that's why we always say you have to live in someone else's shoes because you truly grasp the situation they are in. I remind myself of this on a constant basis. I have no idea what someone else is dealing with so the best thing I can do is just be kind. I sometimes have to get myself in check and realize that even though my family is hurting others are hurting as well and just being kind can go a very long way. 

So again I thank you for your patience and I only hope that Jude's blog will continue to help others in need. On a more positive note this sweet little face was on my memory feed and that always makes me smile. 




Wednesday, April 26, 2017

Dear Parent Who Just Lost A Child



Dear parent who just lost a child - 

I am writing to you because I have been in your shoes and I want you to know there are others out there that understand your pain. I say this because when I first lost my son I felt very alone and as if no one could truly understand what I was going through. The days first following your child's death will feel like a bad dream and you will feel like you are walking through a smokey haze. You may sit in a funeral home decorated with ornate over the top artificial flowers and just stare into the Kleenex box that's sitting in front of you. You will wonder how you got there and what you did wrong in your life to have this fate. The hole that is bleeding for your child in the pit of your stomach will have waves of pain rush through it. You will feel like you hit every portion of the 5 steps of grief in multiple ten second intervals and then you may decide the entire 5 step process is not accurate at all. You may sit in your car when no one is around and scream at the very top of your lungs until your chest hurts. 

Your heart will be shattered and you will wonder how it could ever possibly be repaired. The nights are long, quiet, and the hardest part of the 24 hours you try to exist in. People will offer advice to you and words of possible encouragement that will grate on the exposed nerves in your body. You just have to remember they mean the best and it's because they love you that they say these things. You may question God or lose your faith all together and it will be up to you if you want to seek him out again. The lack of sleep you struggle with will become at times overwhelming and this does not get better any time soon. 

All the attention, food, and condolences will at times seem unbearable but hang on to those around you because after the funeral it gets very quiet. You may sit in your child's room wondering what to do with all their items or you may shut the door and leave it undisturbed for months or years. As you pack their treasured keepsakes in a cardboard box you will wonder how life can be so cruel. You will then wonder if far after your gone if others will know the significance of the items that neatly line that box. 

You may question your very existence and wonder what your purpose in life now entails. I am personally still looking for that purpose and pray for enlightenment for myself and my husband. I can tell you that you will remember the love you have for that child and always will have and somehow that love is what keeps you going. One day you laugh again and you feel guilty for it but somehow you laugh again and continue to. You may begin to venture out of your home again and try to find some hope for the future and the beauty in life. Your work may feel like a concrete shell wrapping your body in a tight squeeze but somehow you manage to do what has to be done. Somehow you just survive. 

You will cry more tears than you can ever count and you will ruin multiple contact lenses. You will realize that the cliche' that time heals all wounds is really just that a cliche'. Time will not heal your wound but it may make it easier to bandage and treat. On the one year mark of losing your child you will feel like you are reliving the nightmare all over again. You will search how to properly honor them and then you will feel like everyone is ready for you to somehow move on. Just know there is no moving on from losing a child only acceptance and heartache. There will be things called triggers that you may not even be aware your subconsciousness picked up until you are crying in a bath late at night and realize what the issue is. It may be an outfit, a specific date, a holiday, or even their favorite song on the radio. Then the only way you can describe it is that your heart hurts. 

What I have learned is to be kind to yourself and give yourself as much time as you need. To eliminate what negativity you can and to accept things will never be the same. I realized it's up to me to bring myself out of the dark hole that's labeled grief and maneuver the dark waters that lay ahead. It's not easy and it's a dark heart wrenching time but somehow we parents in all our sadness find a way to make it. Maybe we find a way to live because our children couldn't. There are many of us out there it's a type of club that no one wants to join or pay dues to. A club of broken hearts filled with mothers and fathers on a journey together to find peace and a ray of hope. 

Blessings. 




Monday, April 24, 2017

A Pity Party

I am not sure where I am going to go with this blog but it will be raw and honest as usual. On Friday we received some news that will impact us financially. Rather than weighing out the options all I could think of was the amount was half our mortgage and began to panic. My mind wasn't working rationally. If it had been working correctly I would have realized we could find extra work or find some way to make it up. I felt a little........insane Friday. Like I was going to finally just lose my damn mind. It wasn't the news it was just an abundance of everything. On Friday I felt like since I was 7 years old life has just continuously smacked me down. I had one big huge nasty freaking pity party and I do mean nasty. I thank my husband for sitting down with me that night and talking to me. I told him I am sure I needed to listen to others and realize things could be worse. He said, "like what?" and he looked at me completely serious, it shocked me because I expected him to get on to me and tell me to lighten up. He said "out of all the horrific things you have been through in your life what could be worse then losing Jude? What could be worse than losing a child"..........then he paused.........."Nothing. You have a right to be upset." 

However it's a little beyond upset. I am NOT well mentally at all and I am very well aware of that. I could see a counselor but lack health insurance however from reading my loss forums I have learned this is normal. It's just hard. That's really the only way to explain it losing someone is just hard. I think of Jude every single day and wish I could have just one more hour with him. I would give everything for him to have a normal healthy life and be here with us. I miss his nurses and our way of life even though it was difficult. Looking back this weekend was the Miss Dallas pageant and that's where we went to immediately following Jude's death to find Emily. I am sure that's what my trigger was. However it was still good to see friends and get out of the house for a bit. The house seems to be my safe haven and if anyone were to ask me what would truly help me I think I would say to be at home and just rest. Work kills me and I know I should be grateful I have a good job but I am so very tired. I just want time to properly grieve and to heal but I feel like commuting, working, and commuting back has kept me from doing that. So do I pray to have my house paid off miraculously? No. I just pray for peace and pray for those around me then I still thank God for all I have and all my blessings. 

Some days are harder than others and some days I grieve okay. Now I am just hoping that going forward we don't have anymore hail, major disasters, and that we keep everyone healthy, I would be eternally grateful. 

Tuesday, April 18, 2017

A Picture and More

Last night was not a good night. I sat in my bath tub and sipped on wine, listened to music, and cried my eyes out for Jude. It happens..........you have good days and bad days. Suddenly I felt like something was surrounding me and I felt compelled to snap a picture. Forgive the nature that this was snapped from my bath tub but this is what my photo showed. There are ZERO filters applied to this picture and I have the original time stamped photo. 


Two minutes later the bathroom was back to normal. 


I felt a little better so I tucked the piggy in and went to bed. 


I want to thank all of you for continuing to follow our story and for putting up with my social media posts regarding life in general and my business ventures. My therapy seems to be social media and those that have stuck with me will always be appreciated. 

Also I received this picture today!! My car has been fixed from the hail. I am so happy and cannot wait to get her back. Thanks Express Auto Hail Repair. 




Friday, April 14, 2017

Heart Wrenching But Spot On!

I don't know how you do it. 

I never could handle my child being so sick. 

You are super woman. 

I don't know how you cope. 

I just cannot imagine. 

These are all expressions I have heard and although I understand the statements it's not always accurate. Sometimes parents of sick children fall apart. Sometimes we cry, we scream, and we feel very lost. The video below made me do the ugly cry at work. I have done every single one of these acts and once you get yourself together you wipe your tears and keep walking. You do it because your child needs you and they deserve the best possible care. I have cried learning about the feeding tube just like the mom below, I have crumbled in the shower bawling, I have screamed in the car asking why Jude, and I have cried in an elevator while people were around. So yes.........you could handle it but sometimes it breaks you. Then if you lose that child the glue that held you together is no longer there so you have to find a new formula to keep moving forward.   



Thursday, April 13, 2017

My first Vlog - Suicide Prevention


Welcome to my first VLOG! I didn't feel I could properly write my feelings regarding this subject. So if you feel compelled to watch my video about suicide prevention and the show 1:3 Reasons Why," then please tune in. This is a very personal subject for me and I remind you I am not a therapist I am simply a person that lived through a tragic suicide loss. NWISD lost another child this week and I needed to say these words. 




Wednesday, April 12, 2017

One Year

We made it through Jude's one year mark and we now keep walking the path ahead of us. I used the description today that I have before that grief feels like you have lost a limb and you learn to live your life without that major component. On Sunday we went to visit Jude and took him a few things to decorate his headstone even more than it already is. I think Jude may have the most festive place of rest there is. We put a large pinwheel up that fascinated children as I walked through the store when I purchased it so I am sure Jude would have liked it too. We also put out a basket of rocks for people to place on top of his marker to indicate they were there and said a prayer for Jude. 



It's hard for me to put into words my exact feelings a year later so I will share with you my husband raw feelings that he posted on Facebook. I relate to them completely. 

"Even after taking the worst blows of my life I have managed to survive a year. Have you ever seen the pictures of houses after a horrible tornado or hurricane? A single stoic house still standing in midst of total destruction. Although the house is standing and appears to be unscathed, what you don't see is that the house is just an empty shell of itself. What the photo doesn't show is the devastation caused in the inside and like those other houses around it that house too will soon be demolished. I sometimes wonder if my fate is the same. 
I wish I could tell you everything is ok. It's not. I'm not. I've gotten good at lying everyday. I'm ashamed to say sometimes I just don't want to be here. It's just not the same without You.
I have succumbed to the fact that this unbearable pain will always be my cross to bear. They say time lessens the pain but for that to be possible my love for You would have to lessen as well.
So like the year-passed I will forge through. I will try to live my life not like the man I'd thought I'd should be but more like the man You taught me to be.
Over the years I had told several people that I prepared for your passing as much as I could by mourning you every single day. The idea was that I wouldn't end up with a large payment of grief after you passed. Yeah, well that was another futile attempt on my part to control the uncontrollable.
It wasn't till You were born that I finally understood what I was looking for this whole time. I always new you were special but it wasn't till you were gone that I knew how blessed I was.
Now that You are gone I am left confused and unsure. Unsure what Life has in store for me. Confused about how people even manage to overcome tragedies. I used to say it is just random chaos and things just happen. I'm not so sure now. I'm having a hard time finding a purpose in life. Nothing seems as important as taking care of You.
You will always be my Son. I will always love You immensely. I ask You to keep sending me those signs. I still need those little crumbs to lead me down the right path. Until we laugh again Jude."

I have started yet another adventure but one I have always dreamed up. My hope is to someday expand and have a store front. Please do me a favor and go like this page. Also if you know someone shopping for prom or pageant dresses I would appreciate the referral. https://www.facebook.com/Scarlett-Annes-Boutique-690569741114716/?pnref=story