Well I spent some time yesterday talking to the surgeons office, the DME, and more. The doctors office told me that they cannot do the mini one initially. The lady that called me also told me that Jude would not come home with a button initially, but she was wrong. I was told he will have the Mic button, and then if it doesn't work they can switch it out in six weeks. He said there is a chance he could come home with a peg if they encounter complications, but hopefully that won't happen.
So I am wondering if other moms felt a little bitter when going into this surgery, because I do. I have been scanning facebook, and when I see that someone is having a bad day I just get irritated. I feel like putting "If you think you are having a bad day, at least you aren't ordering a feeding pump, and IV pole for your child". It's not that I wish any ill upon them, it's just wanting to share a perspective about being grateful. Even in our situation, and even though I am bitter right now, I am still very grateful. Jude doesn't have a central line, his heart is in great shape, and more. Sometimes it's a matter of just wanting to shake people to make them realize just how amazing their life is, just the way it is!!!
So after going rounds with our current DME yesterday I called Jude's home health care to see if they could recommend a new medical supplier. This morning I received a call from Andrew with medco, and he was amazing!!! He took my doctors phone numbers, and said he would make the necessary calls for me. The other facility had me calling everyone, which is fine, but it's hard to do at work. Anyway, he said they would be ordering the pump, and are going to try to get it out to us prior to the surgery. He wants to bring that in, set it up, set the IV pole up, and teach us how to use everything. He also said he is going to try to start getting Jude's diapers and wipes delivered to us, which will be a nice relief.
Emily finds out today if she received a lead role in her school play. She made the call backs, and then they kept her there singing rather late. I know she is so excited so I hope she receives a role, but she said she would be perfectly fine with just an understudy part.
So once we get back from our vacation in February, I have to find another car. I HAVE to find something that will house Jude's wheelchair, and that is in better condition. It seems various items have gone out on this car including the horn, and BOY that's annoying when someone makes me mad!