Last night was our first night home. It was nice to be in our beds together, but Jude was restless. Thankfully, he kept both his feeds down!! We switched from Boost at the hospital to Pediasure at home, and we fed it to him slowly. We also limited the amount of water. We know he needs more fluid for proper hydration, but we are starting this slowly. It won't help his hydration at all if he is throwing everything up.
About three thirty Jude woke up, and therefore I am very tired today! Finally about 5:30 he got very quiet, and I guess he fell back to sleep.....I did. This morning when he got up Mike called me and informed me the reason Jude got so quiet.......he had removed the tube. So Mike, and the nurse are having to place it back in ... again! They discussed wrapping Jude, and putting him in his stander so he will be immobile while they place the tube. The nurse mentioned getting something to help Jude relax each time they have to do this so it's not so stressful on him.
I am off to work.