Saturday, February 7, 2009

A public seizure

Well it happened........... our first public seizure. Mike had a little money stashed away so for a treat he took us to lunch. Once in the eatery Jude's eyes started flashing up in that tell tell sign that he is about to have a seizure. I grabbed Mike's arm, and he looked towards Jude's car seat quietly saying, "he is about to start". So I calmly walked over, and took him out of his car seat, and the audible yelp started. So I gathered his blanket, and took Jude outside where we sat on a seat on the nice sunny day. A few people stared as they walked by, and one lady waited in her car to see if she could help, or to see what was wrong. She finally grudgingly drove away because I think she sensed I had done this before. Once Jude was just twitching, and not yelping anymore I took him back into the resteraunt with only a few glares. I actually felt very comfortable, and knew that everything would be alright. I also realized in a sense that everything wasn't alright........and never would be. Does the combination confuse you? Let me explain that it's as if we know it's not okay, but we are okay personally, if that explains our situation any better. So they brought our food, and Mike and I switched off eating with the baby in one arm. Emily was there too, and handled everything very well.

We then left and walked the sidewalks of the shopping centers in the brisk pre- spring wind, and stared at pretty objects we shouldn't waist our money on. Admitting to ourselves that we may no longer be able to afford them, but knowing they don't matter anyway. We looked at pretty objects for the house, softball bats, clothes, benches, books, and strolled along the sidewalk in the sunshine. Then we stopped, and I saw a picture frame that made me tear up for a second and I grabbed Mike's arm. It said "Life isn't about waiting for the storm to pass, it's learning how to dance in the rain". He smiled at me, and we saw the red tag marked 75% off clearance and he got it for me. So I took it home, and carefully searched for pictures to go inside of it. I put two of Jude, 1 of Em, and 1 of Mike and I. Then I carefully hung it on the wall. I keep passing by it in the hallway, and smiling each time I do because the white words that scroll across the dark red paint are so true. Life truly does change in a situation like ours which is a situation that afflicts so many others. I am thankful for our life though, and thankful to Jude. He has taught me to appreciate more in life, and to see things in a way I never would have before. I am thankful to our tiny little peanut, and I hope he knows it.

7 comments:

andrea said...

when your blog comes up on my computer, the photo of jude just pops up...it is so cute. i wish things were better for jude right now..but it will happen. your honesty is humbling, and it is nice to meet such a genuine person.

Anonymous said...

I have been reading your blog everyday to see how Jude's day went, but today's really made me tear up. You are blessed with a special little family, not with Jude's problems, but with the life lessons your family is learning. That picture frame sums it all up. To make the most of a situation and ride it out...good luck to you and prayers are with you and others going through similar things. every time i see a pic of jude he looks so "happy" and I believe he is! he is lucky to have you as you are him.
I am blessed with 3 healthy children, but I know that things unexplainable happen and I am happy for every day that we are blessed with our health.

therextras said...

Beautiful post. Thank you for sharing.
Barbara

Ellen said...

I am sorry you had to deal with that, but I know what you mean about things being OK. I know just what you mean.

That was a sad, optimistic and beautiful post all at once. And I just love that picture frame. I need one like that. Take a photo of it for us, please.

Anonymous said...

This is nordic from the vm website. I keep reading your blog every day to check on Jude, I love his new photo he's such a character. Such big beautiful eyes. Your blog is so touching by its honesty, and I'm sure your family will be of comfort to others in the same situation. We were told the same as you at the 18-week ultrasound but things are going really well so far for Nye. I don't know what the future will hold, but nobody does so you are so right that you just have to live for every moment and deal with whatever comes your way. Bye from snowy Norway.

jocalyn said...

I'm glad you guys are getting out as a family! I think its SOOO important (especially for our older ones) to maintain some "normal" family stuff! Thank you for your kind words and prayers as we deal with our new diagnosis...ugh. Can you still dance in a tsunami?? kidding.

~The~Wacky~Whittons~ said...

I was on my cell last night checking the blog and Brad was asking me to do something. I shushed him lol. He said what are you doing? I said I am reading about Jude. He said Oh, NM, keep reading and tell me how he is doing.

Hugs to you for your day. I love the picture frame too! what strong words!