and up out of the ashes

Just when you think that you are falling off the cliff you have been hanging on a light shines through!!! I received an email tonight from a nice lady that has a son with bilateral closed lipped schizencephaly. He didn't have a similar diagnosis it was the same! Granted her son does not suffer seizures, but they were given a grim outlook. They were told her would be blind, deaf, etc etc. She said he is five years old and although his speech is delayed he walks, talks, can see, can hear, etc etc. Awww so nice. We can only hope that Jude will be so lucky.