Mike said Jude has had 2 seizures today, but that is still a lot better than he was doing. We are still praying that his medicine does pull through, and stops them all together. Kel is helping get his baptism stuff for tomorrow. I am a little confused at what has to be done for a Catholic baptism. So she has been a big help!! She called and asked me if I had a candle and I replied "for what?" she knows I am a little lost and just giggled...ha.
I am feeling a bit out of sorts this afternoon, and I am not sure why. It's not that I am negative, maybe just a little lost. I have also been very busy at work today so maybe that's what it is. We were getting our time sheets ready to turn in today for payday on Monday, and I looked at my hours out. I thought about my time off next year, and what it may entail. I also thought about the vacations we had planned to take the kids on. I want to be there for Jude, but I am also realizing getting away to normal places, and doing "normal" things is going to be more difficult. We will have a new normal I guess. I don't mean that to sound selfish, but honestly even a night out is going to be hard. We have to have someone that can control a seizure. We will do what is best for Jude though, and as tired as I am right now we aren't going anywhere any time soon anyway. I reminded myself that even though this seizure diagnoses is new, these worries are not. This has been going on for over a year for me, but again everyone has their own story. Plus, I pray we have many more years of dealing with these emotions. By the way.... I get over these feelings in about an hour. I just hash them out on my blog because I guess it's theraputic. I am anxious to get home, and see my babies today. We will have a calm night of watching the new Indiana Jones .... hopefully seizure free.
We hope to see everyone at the baptism tomorrow. It will be a day of rejoicing.........not sadness!!!! :)
Please have a good weekend, and hold your kids close.