tag:blogger.com,1999:blog-8581317431133132518.post6162478481046388070..comments2023-07-25T06:31:22.641-05:00Comments on Jude; The diary of a baby and a stroke: FridayJennifer Ortizhttp://www.blogger.com/profile/14350225247489608653noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-8581317431133132518.post-78863448025943724882008-12-14T09:24:00.000-06:002008-12-14T09:24:00.000-06:00Hi there, you don't know me, but Shawn Walker sent...Hi there, you don't know me, but Shawn Walker sent me the link to your blog. I too have a special child. My Tracie's diagnosis is Holoprosencephaly. We were told when she was born that she would be a vegetable, and would die before she was 6 months old. She will be 8 years old in March and is far from a vegetable. Yes, she is seriously disabled, but you can ask Shawn about this, she lights up a room when she enters it. She has changed lives, especially mine. I'm so sorry that you're having to deal with all of these emotions. Reading your blog brought back so many feelings of mine, and they were all just like yours. All I can say is pray, lean on your husband, don't try to be supermom and do everything by yourself, don't be afraid to ask family and friends for help, and don't be afraid to treat Jude as a normal child. After I realized that Tracie wasn't going to die quite so soon, I quit touching her with kid gloves and started acting as if she were a normal child (as much as I could) and I think that helped me a lot. I know I'm rambling, but if you ever need to talk, ask Shawn for my email or phone number. I live in Grand Prairie. God bless you!Carriehttps://www.blogger.com/profile/14417154801732986158noreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-24367268133172253692008-12-14T09:23:00.000-06:002008-12-14T09:23:00.000-06:00My thoughts were of Jude this weekend. I am hopin...My thoughts were of Jude this weekend. I am hoping the baptism went well and he had a seizure free weekend. I wish I lived closer so that I could have gone to the baptism. <BR/>I saw where you were going to watch Indiana Jones, the new one. I know your a great movie critic, how did you like it? I hated it! They should have left that movie on the cutting room floor. Sure was not like the olden days movie of Indiana Jones!<BR/>Anyway, just wanted to let you know I was thinking of Jude this weekend.luanehttps://www.blogger.com/profile/17618139377925502789noreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-49501532074562201602008-12-12T23:00:00.000-06:002008-12-12T23:00:00.000-06:00I so wish I could be at Jude's baptism. We will w...I so wish I could be at Jude's baptism. We will with him and you in thought and prayer.<BR/>ShawnAnonymousnoreply@blogger.com