I understand the pediatrician is unsure how the seizure medication works, but I do trust his judgement. We will be keeping a close watch on Jude, and if anything changes I will not hesitate to take him in. The great news is that Mike brought Jude by my office after the doctor. Jude was sleeping, but I was able to wake him up, and get him to take 4 ounces. That means since 8am he has had 9.5 ounces, but it's something!!!
Thanks for your continued thoughts. I will update this weekend. Now I just remembered that the adaptive stroller guy still hasn't called me back, so I am off to call him again
4 comments:
Jenn,
We will pray for Jude to get stronger and well! I remember well, worrying so about diaper counts and "minute" ounces of liquid! He is such a handsome boy.
Hi, feel your frustration, I was just curious if you have ever heard of a feeding tube, otherwise known as a G-tube. It goes right into their stomach and it makes giving meds a breeze, you can give formula through it and monitor how much they are taking in. I would talk to a feeding specialist and push for a swallow study to be done. It will show if he is asperating liquids. It doesn't mean you have to give up hope that he will never eat or drink on his own. My son has one and he did eventually learn to eat and drink on his own, it just takes alot longer. Good luck and don't take NO from those doctors.
I am praying for your sweet little Jude! :)
Blessings,
Tami
PRAYING JEREMIAH HOME QUICKLY
www.tillGodbringsthemhome.blogspot.com
Jude had a swallow study, and doesn't aspirate on anything, but very very thick liquids. I am hoping to avoid a g tube. Luckily Jude is eating better today.
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