We called the dr on call who said he was concerned, but was okay with us watching him. He said he truly believes this is medication related, but was a bit concerned about "bubbles" Jude has around his mouth. He said this can be a sign of pneumonia, and this medication can lower their immune system (I didn't know that). Anyway, I explained he hasn't had any seizures in 48 hours which is AMAZING for him. The doctor then said he believes this is just a dosage issue. So he gave us permission of sorts to watch him for another hour and to see if we could get him to wake up. He said if we were successful then he would be alright with us waiting until tomorrow to talk to our personal doctor. He did state we needed to skip his medication doses until tonight.
So when I got off the phone I undressed Jude, and got a wipe after him. He was still very hard to raise, but we finally got him up. He ate 3 ounces, and then fell right back to sleep. We were concerned, but felt if he was willing to eat then his body must be functioning okay. Jude slept for another two hours, and finally about 2:30 in the afternoon he got up for the day. He has eaten another 4 ounces, and we are going to try to feed him some cereal soon. So far today he hasn't had much to eat, but at least he is awake. My friend Jocalyn texted me that every time they try a new medication her daughter does this. I told her it's SCARY!
The other thing Jude is doing is tongue thrusting constantly. He keeps pushing his tongue out of his mouth over and over, and we aren't sure why. He also keeps crossing his eyes a lot. I guess we will chalk that up to the medication too unless the doctor tells us otherwise.
Thank you for your thoughts and concerns. Again, at least we are seizure free!!!!