So Jude's big doctor appointment with his neurosurgeon is today. I am not going to be able to make it due to work so Mike will be making the long trip out to Plano today. I just emailed him some questions to present to the doctor. Here are a few. ...
1. Is there a way to have ECI increase the amount of therapy Jude is getting from once a week to twice a week?
2. In the doctors opinion which is worse the seizures or the seizure meds and why?
3. Would it be beneficial to check Jude's liver enzymes prior to giving him the depakote (it can cause severe liver issues)
I will be sure to update when I heard back from his visit.
So it's Monday again, and I am back at work. I am going to make it a good week though. I am getting back into my work out routine tomorrow and not deviating from it. I am going to work on my garden at home, and just relax with the family.
So I did take some pictures this weekend. While we were at Em's softball practice Mike snapped a picture in the car showing how well Jude is starting to hold his head up on his own:
Mike also decided to teach Jude how to drive:
Then Emily decided to help Jude learn how to walk. The fact that Jude lifts his leg is a very good sign.
Well my phones are ringing off the hook so I better go
4 comments:
HE seems to be doing great ! He looks wonderful ! Talk to your ECI person and request an increase ! and if they dont seem open to the idea go over thier head : ) Long story, but we are getting a new ECI person -meeting her tomorrow- because the other one did not see eye to eye with us.
And YES ! we have to meet ! But sadly, no we arent going to DDA :(. Am I nuts to put Kayden in her first pageant ? thinking about it for nent month at UR !!! Pageants are too much for us to travel for right now- but maybe we can make a special trip to Dallas area -Jude up to the zoo or soemthing by then- maybe ????
DDA is the only one we attend just to help out because it was originally mine, and I love the Demerses.
The zoo sounds fabulous!!! I will be sure to talk to ECI and see if we can up the therapy.
Jude is doing so well!!!! i already said this a million times, but so adorable!!!! have a good work week.
We had the same issue with ECI...they were only able to offer us PT 2 times a month! That's why we also added therapy through Cooks. Your Dr. can write a script for something in addition to ECI. I've heard good things about Our Children's House Baylor and there is one in Grapevine. Once you get on MDCP you won't have to pay anything, but if you do it now your co-pays can get pricey. Hope you have a great week!!
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