Wednesday, December 16, 2009

lyrics, and emotions

It has been rather hectic around these parts the last few days, I apologize I have not updated. Jude is doing very well, and is starting to try to communicate with us a lot more than he normally does. He is also in a wonderful mood and expresses this with lots of smiles, and giggles. In addition to this he is eating frequently, and without issue. I guess the trick was we just had to use the infant bottle, and now Jude will take 6-8 ounces at a time, without issue.

Jude had speech therapy today, and Mike took him. I braved the mall while they were at therapy because I had to grab wrapping boxes for the family we are gifting to. By the time I got done with that horrid place my Christmas spirit was all but zapped. I vowed to finish my shopping online, and marched myself back to work. After therapy Mike ran Jude by so I could see him for awhile, and he was just chattering away to me. She didn't push to much with Jude today, but they will be introducing solids again asap.

Jude has also started back with ECI, and is doing very well. They were testing how he responds to Mike's voice yesterday, and they noticed Jude will turn whichever direction Mike is talking from. This is encouraging because Jude has always favored his right side, and doesn't like to turn to the left. We have always attributed this to the stroke being worse on one side.

So last night I was listening to the TV rather than watching it because I was busy. Suddenly I realized Evita was on because I heard some music streaming through the living room. The song "You must love me" was on, and although I am not a huge fan of the musical the lyrics to the song made me a bit teary. I wondered if this was how special needs kids feel?

"Where do we go from here?
This isn't where we intended to be
We had it all
You believed in me,
I believed in you
Certainties disappear
What do we do?
For our dream to survive?
How do we keep,
all our passions alive
As we used to do?
Deep in my heart, I'm concealing
Things that I'm longing to say
Scared to confess, what I'm feeling
Frightened you'll slip away
You must love me, you must love me
You must love me
Why are you at my side?
How can I be, any use to you now?
Give me a chance, and I'll let you see how
Nothing has changed"

I know it's more geared to adults, but it's still rather fitting in some ways. While at the hospital this last visit a nurse told us a horrible fact. Many times when a child with special needs is born the parents have no clue there is anything wrong until after the birth. This happens because they don't catch something on a sonogram, the child has a stroke at birth, etc. Once these parents are given the devastating news some choose to ............. leave the baby at the hospital. The hospital then finds a home for the child. I couldn't believe it, but it's true!!! The nurse said you would be amazed how many times it actually happens. I guess if the parents cannot properly care for the child, or love them in the way they deserve, then it is best someone else cares for them anyway. It still blew me away.


Candace said...

Ohhhh, that sends chills down my spine! That is so terifying...

Sherry C said...

That sends chills down my spine too right to my toes. I never knew of my daughter's disabilites until after she was born and couldn't image not having her with me. It is scary seeing your new baby so sick but there is so much love it is unimaginable to walk away.

gilda said...

Your words are so true if a parent is willing to leave their babies behind just like that then those babies belong to a better home. Our babies are a gift and many parents long to have a child but because of different issues do not get the opportunities to have children,and want them so bad. God sends them to us just the way he wants us to have them. So to all the parents with children with special needs I commend you for that.

Vicki said...

I found that to be true at the children's hospital where Gage was. I never thought that such things happened. Also, there are infants whose parent(s) take them home and don't take care of them and they end up back at the hospital until CPS takes over. There are even homes for kids on ventilators whose parents would not take care of them. I guess some think that if their baby is not perfect then the answer is to either destroy them or leave them for others to take care of. Sad, very sad.

Katy said...

We had one of those on our floor--the baby without a family. Mom did stop by one day--to complain because she'd been contacted about her "child abandonment." She was complaining in the elevator to the rest of us--like we didn't have our own problems.

Anonymous said...

Our family is the "someone else" family that was chosen to care for our girlie. We are a foster family and have cared for many kiddos, but honestly never dreamed we would walk this walk, yet we are totally smitten and in love with our little girl who has rocked our world and given us so many new experiences. Anyways, it is more true than people realize how many kiddos need someone else to step in and provide the basics when a birth family can't do it or chooses not to do it. I feel totally blessed to get the chance to be her mom!

Bronx Cataldo's said...

You have no idea how many times it happens. I heard of parents who had twins and only took the healthy child home. the other little guy lived at the hospital for a while and only the Dad would come to see him. He was later moved to a hospital home. Its sad when this happens.