Well I had to leave tonight to come home for work tomorrow, and to get Emily to school. Of course, after I left Jude woke up very angry. Not only did Jude throw up from being so upset, but he threw up the NG tube. That means Mike had to go through training on putting the feeding tube back in by threading it up Jude's nose. In all the commotion Mike lost his window to order dinner, but I am not sure he feels like eating anyway.
I received the best email from someone today that explained her daughter had an NG tube. She said it SUCKS, and it will suck until you get the G tube. She explained they had been through the same thing. It was so refreshing to hear from someone else that it's not all sunshine and roses, that this situation SUCKS. It's not what anyone plans for their child, but you just have to do it to help them survive, and live the best life they can. Mike and I have to learn to listen and watch for positioning of the tube, or it can be life threatening. It's not what we planned, but lots of people have them, and now Jude does too.
I am not sure what our future holds, but I am positive Jude will be in it. His nurse is going up tomorrow to also be trained on the NG tube. We are taking each day minute by minute just like everyone else with a special needs child. I have learned so much from Jude. I am learning to let my bitterness go this weekend. To understand that not everyone will understand what it's like to care for an ill child, and to be grateful for every second you have, but I will. To know that material items do not matter, but each second of love does. I consider myself lucky, but wish my child did not suffer to learn this lesson.