Jude has been very alert tonight, and I have spent most of the night admiring his little face. I have avoided phone calls, and just rested with my little boy. Em went to a friends house, and Mike had to run up his friends salon, so mommy and Jude were alone. According to Mike Jude has only had two seizures today........that's a miracle, or the Felbatol I was upset with. So far today Jude has looked me straight in the eyes, giggled, tried to roll over, looked over his shoulder when Mike called him, and ate with ease. I am not sure if this is just a "good day", or if the medication is truly working. Either way I had enjoyed tonight with him.
Mike was telling me a story about an older child with special needs, and I looked at him and said, "So when a child is 7 years old, and you still have to change their diaper.......in public......how do you do that, because they won't fit on a changing station?" He just replied, "Now you know why I stress so much". I replied that I believe that Jude will walk with assistance, and we will work with his issue. Regardless of that topic Jude filled me with hope tonight, he really did.
The nutrionist came today and said she is amazed at how big Jude is. She admitted he needs more calories, and fat so she gave us several samples of Boost, and instructed us to get some heavy cream for his bottles. Lord have mercy the boy will probably have some serious bathroom issues with that ingredient. His physical therapist also came today, and she told Mike, "Somehow Jude is making accomplishments in his own way, it's subtle, and it's on his terms, but I am impressed.". This made me very very happy. On top of that we have avoided the inside of a hospital since December, amen!!!!