Wide awake.
Well it's 10:15pm, and Jude is still awake. Yes, that means he slept 2 1/2 hours last night, maybe 2 hours this morning, and an hour this afternoon, and he is awake. Mike says there is no way the medication could reach his blood stream this quickly, but I fail to concur. Jude is happily chatting away with his glow globe on his blanket, and this even after 12 ounces of formula at once. Jude has eaten wonderfully today, he even ate the entire amount of solids the nurse made! He also held his rattle for five minutes even bringing it to his mouth, stood up on the stander for over twenty minutes, and didn't even cry during his bath. I am rather impressed, but I am hoping he will sleep. I am encouraged at this recent sudden development of a want to progress, but I am discouraged at Jude's lack of sleep. It's only been two days, so I will reserve any other judgements for a little bit longer. I am still battling with all my emotions from last night, but I know they will soon be settled. Thanks for the recent comments, and emails, I so appreciate it.
2 comments:
I don't want to scare you, but it took us three months to get Charlie back on schedule after changing his seizure meds--ended up having to take away one of his naps. Oh, the doctor assured me it wouldn't have any effect on his sleep at all!
Jen,
I've read your blog for awhile and I think even commented a couple times. My son, too, is on felbitol, and right away we noticed the "no sleep" thing. Within a day or two. He went over 27 hours with only an hour nap. He fortunately, was hospitalized during this time, so the nurses helped with him so I could sleep. However, our epileptologist (he is a neurologist that specializes in treating seizures) recommended Melatonin for a couple of days until he got used to the medicine. It worked WONDERFULLy! And it's natural, so I didn't feel like I was adding another med. Maybe you could ask about this and get the appropriate dosage for him. We didn't use it long term, but for maybe a week??? or so.
My son has been on felbitol for 5 months now and it really controls his seizures well. He is also on the ketogenic diet. I hope you have good luck with the felbitol!
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