When I got home yesterday the kids, and I went on a walk. During the Spring and Summer I try to walk every night, and I am determined to lose ten pounds. Anyway, we walked up to the park which was by the prior model homes, and Emily wanted to swing. I decided to maneuver Jude out of his wheelchair, and take him on a swing too. I held on to his neck to support his head, and I placed one hand in his mid section on his diaper. We then began to swing, and I began to hear giggles, and squeals. Emily stopped swinging because she was having so much fun watching Jude. So why had it taken me this long to take him on a swing set?? I harp on my blog about how special needs children need to be treated the same, yet I had held him back from a normal childhood event. I sometimes forget that Jude is a stroke victim trapped in a normal child's body. He understands what he wants to do, but he cannot communicate it. So after the swing I got very adventurous, and let Emily take Jude down the slide. That was not as easy to accomplish because I had to crawl up the playground equipment to position Jude carefully on Emily's tummy. I then secured her hands around him, and ran back down to make sure they both stopped. He seemed to like that as well, and looked like he was ready to play more, but then he had a seizure....it was all to much. So we loaded Jude back up, and walked back home.
Jude had several more seizures throughout the night, and Mike mentioned giving him his new increased dose of the Felbatol. I am so resistant because it seems his seizures have increased, he is throwing up, and he has insomnia since we started the Felbatol, why make it worse?
We are taking another walk today, and heading back to the park. This time Mike wants to come with us too.