It's a better day today. Jude is still not eating 100%, and still has a lot of mucus, but is doing some better. Mike took some photo's of some friends today at the park, and I cannot wait to see them finished. His mom watched Jude for awhile while we went and completed the photo shoot. It was nice to be out in the sun, and I think it put us both in a better mood. Here are some recent photo's Mike did of Jude. He is going to get his photography business going again, and he has such a great eye.
Charlotte, Jude's nurse called earlier, and Mike broke the news to her that the nursing has been suspended pending the appeal. She was said, BUT she does have a friend that needs help for the next six weeks. She also said she wasn't very happy with the provider we have been using, and we are both talking about finding a new place together. In addition she said she was very surprised they cancelled the service because of how needy Jude is. We just ordered the pieces for the suction unit, and hopefully she can stop by to show us how to use it properly. Anyway, I also followed Jocalyn's suggestion and called respite about increasing our hours to subsidize for the nursing. They were very nice, and said it very well could be possible. We still need to make the appointment to see the doctor about the G button. We have to schedule the surgery, but like I said we are trying to push the surgery to the middle of May if possible.
I appreciate everyone's nice comments, and advice this past week. I felt so negative with the emotional comments over, and over. Although, I always promised to be honest in my posts. I am off to take Em on a walk, enjoy your weekend.