Sunday, March 14, 2010

News meds are in

We went ahead and gave Jude his first dose of his new medication today. So far he seems okay, but my understand is we have to watch him for 90 days. He seems rather calm this morning, and is laying on his wedge just staring at his glow globe. He was up a lot last night, so this just could be because he is tired, or maybe it's a calming effect of the medication.

His seizures have been more limited today, so that is great news. I reached out to a two moms who has used Felbatol before, but I only heard back from one. She did not experience any issues, so that was a relief.

We are so tired, but today is Frankie's birthday so we are going to do our best to get to his party. I woke with a headache, but it's easing up some, and we need to venture out. Now let's just see if I can get the hubs off his PS3.

3 comments:

Candace said...

Jenn, Will be praying for good results...I know it is so frightening....Crossing my fingers for Jude...

Our Journey said...

thank you so much for coming yesterday! it was nice to finally "meet" you and great to see jude again!! so thats why mike didnt make it huh? ps3? LOL, just like a man!!

Jamie said...

Praying for you, Jude, Emily, and your husband that this medicine will bring peace to Jude's mind and peace for your souls. You are amazing!