Jude's seizure activity has picked up. I am sure it's because he is growing and yet again we need to adjust the medication. We still have not raised his nightly dose to 3 because he was not eating properly. Seems he seems to be increasing his food intake we are going to increase the medication tonight. I am hoping this does not cause another reaction where he refuses to eat.
As stated Jude's food intake is up, which means he is eating 6oz bottles with rice. Jude is still refusing to eat baby food though, and I am unsure what this means for the future. I know we have to eventually get him to take more calories everyday. We requested a nutritionist from ECI, but they told us they only have 2, and the wait can be long. We are also still waiting on the vision therapy. I am about to call a few people!!! In addition I have yet to hear back from MDCP, but I did get the HIPP approved so that's good news. Dealing with agencies can be grueling, but in the end the rewards are worth it.
So I mentioned Jude has not been going to sleep. This is a video from last night. It's very dark so you cannot really see him but he is moving around, smiling, and talking. If you are patient you can hear how Jude "talks".
I then snapped a picture of him with his eyes wide open catching him being naughty, and not sleeping!! He is teething so he has a puddle beside him, just ignore that.
So I know that soon Jude needs to go upstairs to his crib, but I am having a really hard time letting him go. He is getting a bit to big for the bassinet portion of his play yard. Mike laughed when I suggested that we just let him sleep in the play yard its self each night. He then made a joke that I was going to make him bring the crib to our room. I just feel better knowing Jude is beside us.
So let me confess something that really annoys me, and it shouldn't. The Gerber mailers explaining what your baby SHOULD be eating right now. It's full of menu's, ideas, and lots of babies eating to their hearts content. I growl at the mailed every time I receive it, and would like to tell Gerber a thing or two! I know it shouldn't bother me, but it does. I would like to ask Gerber to feature a baby that has special needs in their ads. Maybe show the special spoons made just for children who need help getting the food to their mouths. Anyway, I will hop off my soap box, but I had to share. I guess it's equivalent to receiving their flyer's when I found out something may be seriously wrong with Jude prior to when he was born. As an expectant mother we all sign up for these wonderful offers of free diapers, formula, wipes, and more. Yet when something unexpected happens these very same joyful mail surprises become reminders that everything is no okay.