Yesterday was a busy day. Emily, Jude, and I attended church with my dad, and Kay so Emily could talk to their congregation about her Smile boxes. I am happy to report that Emily raised over $400 for her cause yesterday. I then put a call into Children's in Dallas today about donating her July boxes to them, and they accepted. So after we get all our product in Emily will be having a box making party at our house, for any of her friends that want to join. With her donations we are hoping to make the hospital 50 boxes. At lunch we then discussed making Christmas boxes for all the local hospitals. Therefore, we are delivering her boxes to Cooks Wednesday, and then another 50 to Children's for July, and then she plans on fundraising for Christmas boxes. We discussed a goal of delivering 25 boxes to Dallas Medical Center, 50 to Cooks, 50 to Children's, and a dozen to Baylor, and HEB for Christmas.
After our church activities we came home to do some more errands. Jude slept until about 2pm, but we were able to feed him as he slept. We got about 11 ounces in him by 1pm. I am concerned because he is sleeping a lot, but that could be the increase in medication. Again, it's the never ending question of if it's medication, normal baby behavior, or life threatening. You get to a point when you have an ill child that you don't rush to the hospital anymore. You learn to adapt, watch the child to the best of your ability, and try to go about a normal life. Jude's diapers are wet, he is awake from about 2-10, and when awake he seems his normal self. So we are watching him, and concerned, but we feel that he will be okay. If at any time we get a feeling that something is wrong we will rush him in.
Last night about 5pm we dropped the kids off with my dad. We then went to dinner, and a comedy show with my cousin, and her husband. The food was wonderful, and the entertainment was great. I honestly don't think I have laughed that hard in forever! So it was nice to get out of the house for awhile, and I knew the kids were in good hands. Once we got back we had to give Jude his seizure medication. His big dose of 3ml is at night, and he was not happy about it. Jude got so upset that he was gagging, wheezing, and crying hysterically. I felt so terrible for him! He couldn't get calmed down so I rocked him, and then laid him in my arms until 2:30am. I am very tired today, but at least he finally fell asleep...poor little guy.
As I stated the other night... Jude loves music! When we were being told to terminate, and I was going through all my roller coaster of emotions it was Emily who helped with a simple suggestion of a song. If you remember I had walked into her room and mentioned Jude, and told me to just listen, she then opened up her music box and "Somewhere over the rainbow" filled the air. At that point I knew that Jude was going to be a part of our family. So I played the Hawaiian version of that song over, and over for him while he was in utero. Just watch how he responds to it with Mike.