It's unfortunate, but Jude did have a seizure this afternoon. Mike said the seizure wasn't that bad, and that Jude just twitched for a bit afterwards. The neurologist called back, and confirmed he would like to add the additional topamax in the morning. We are crossing our fingers that the additional medication will fully control the seizures, and hoping it does not wipe Jude out of cognitive abilities. We did have our meeting with MDCP today, and I am now buried beneath a mound of paperwork. Throughout my life I have always felt rather controlled, and able to handle most anything set in front of me. At times throughout this experience I feel a bit frazzled and overwhelmed. I sat with the paperwork on my desk today, and just stared at it for a bit. I did eventually start filling it out because I have a tendency to be rather prompt. I am encouraged at some of the items the dept may be able to helps us with, and cover. I finally feel a bit of relief provided by our government.....granted I haven't seen anything yet....but I know it's there.
Tomorrow I have all my blood work with the doctor to test for any deficiencies in clotting so I guess I will know shortly if this was caused from that.
Have a great night all.
3 comments:
Hi I just found your blog from a friend. Jude is sooo adorable. I cant imagine facing seizures everyday, but you and dh seem like pillars of strength. My sister has a son with epilepsy and he had a very rough time until he was about 8 months old, but they found the right combo of meds and he is a much healthier 16 month old now. My oldest is autistic, so I know a little something about knowing your child may never be normal (though it is not life threatening) and learning to be ok with the future no matter what. You are in my thoughts and prayers.
Don't you worry about financial just think the safety of the baby..
Well it's impossible to not think of the financial when you have to keep your family going. Although MDCP is there for Jude's safety, and to help him. So it's not just financial it's nurses, and staff to help him.
Post a Comment