Well Jude is throwing up again and has been for a few days. Seems to be after every meal, but sometimes up to an hour after the meal. He isn't in any danger yet, but I do think he is losing some of his seizures medications. His seizures have picked up and he is presenting with new ones. He started this new seizure where he sounds very scared and it's heartbreaking. His vitals are good except the pulse ox dips at night......not all that uncommon but it can drop to the high 80's. No fever and his lungs sound good. The Spinal fluid leak is still pooled around the incision and it's not leaking. His clonus and tone are just out of control so the nurse is giving him valium today.
We are kind of at a loss. There isn't much they can do because Jude's not officially "ill". He just still isn't himself and there are a lot of "hmmmmmmmm" moments. Any ideas from people that use Baclofen, nurses, or doctors is great. Honestly, I think it's just a wait and see situation unless Jude continues to vomit.
Luckily he is still smiling.
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