Update

Good news! I took it upon myself to start calling Jude's doctors and advising them of the insurance situation. My primary concern was the neurologist as we see him the most. I truly love Jude's neurologist, and did not want to switch. Luckily I received an email this morning, that they would indeed take the medicaid. Although they said there would be a $50 charge, so I think they may just be scaling back their fees for him. Either way it's awesome and I am thrilled.
I also put a call into Jude's pediatrician's office. The doctor was out, but the billing specialist was so nice. She said that they too would "most likely" be able to accommodate us.

Jude had several crying seizures yesterday which I just hate. The neuro tells us that crying is an involuntary reaction, and Jude isn't aware of what is going on. I just don't think that is accurate. You can tell that Jude is so scared, and looks at you like he is wondering what is happening to his body. I am beginning to feel that since they are "cluster" seizures Jude is able to retain some cognitive ability, and understand there is something happening that is wrong.

So Mike took Jude last night from 9:30 - 1:30 so I could sleep, and sleep I did......soundly! He then brought Jude in and put him in his baby bed, and he slept until about 9am this morning. I woke up about 4 because it is just an automatic reaction for some reason. Luckily I soon fell back to sleep.

Today Jude sees the GI specialist to check his weight, feeding, and to continue the evaluation on if a G Button is necessary.