A little more information

Yesterday when I got home Jude was very fussy, VERY FUSSY! His grandmother had been rocking him trying to get him to quiet down, but it wasn't working. I took him, and wrapped him tightly in a blanket which seemed to make him a bit happier. I believe Jude likes feeling secure, and this leads me to want to look for some sort of compression blanket. Normally if Jude is just whining he will pucker out his bottom lip, let out a whine, and he doesn't shed any tears. Last night real tears fell, and I knew he was hurting somewhere. Mike stated Jude has two seizures yesterday so I assumed he had a headache and gave Jude some Motrin. This seemed to do the trick, and he slept for about an hour. He did great until bed time, and then he started crying again. We finally got him to sleep, and he slept through the night.

I am looking into extra therapy for Jude at "Our Children's House Baylor". I plan on calling them today to see if we can schedule an appointment. I am hoping that goes off smoothly without issues. I know we shouldn't compare our kids, but I do find myself wondering about Jude's abilities. I wonder if any of the disabled children of the moms that read my blog started off with Jude's issues, and still learned how to sit, speak, or eventually walk. My biggest concern is that Jude still cannot keep his head up, but he is trying. He is beginning to lean his head back, and look me directly in the eye with a grin. He is also raring his head back with his mouth open, and presses it on my face with a giggle. I truly believe this is Jude mimicking my kisses to him. He also will finally keep his head straight, and turn towards the person calling him, although it soon falls. I accept Jude no matter how he is, but I am always evaluating our circumstances to see if there is any additional help we can provide him.

Mike and I discussed yesterday how Jude is beginning to get "the look" from others when we are in public. We honestly don't mind at all, but he is beginning to show his disabilities due to getting older. I wonder how people will be when he is in his adaptive stroller. Mike showed me a rather inspiring story from a father the other day regarding his son with CP. His son was deprived on oxygen at birth, and suffered long term disabilities. He did not walk, talk, etc but he could react to his parents, and they insisted on treating him like the rest of their children. They talked with him, sang him his ABC's, etc. One day they got him a unicorn {an adaptive device where you can type on a computer using your head} unsure of what his response would be. To their surprise he typed out "Go Bruins!". It wasn't hi mom, or hi dad, it was letting his parents know he understood what they had been saying, and that he was a sports fan. So maybe there is a lot more going on behind the mask of these disabilities than we think there is. Maybe our children understand more than we have ever given them credit for.