Yesterday when I got home Jude was smile, and giggles. He was very calm, and did not get upset one time, which is unusual. I think the stimulation from having the nurse there, and then Mikes mom made Jude more calm. I put his glow globe down that Anna gave us, and he probably sat there coo'ing at it for at least forty five minutes.
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Like the chocolate Pediasure on his shoulder?
After dinner Emily went upstairs to complete some Smile Boxes that are going to a home that houses abused children in Dallas. She has thirty boxes going today, and Mike was generous enough to make the long drive out to drop them off.
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Now that the boxes are flat she likes to draw on them, I thought this one was really cute.
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So our reservations have been set for DC, and I paid for Mike's airfare. Em, and I were included, but we had to pay for Mike. It wasn't much, and I am glad he will be going. I am a CHICKEN when it comes to flying, so I like him there with me to calm my nerves. Also, I want him to enjoy getting away for awhile. As I mentioned my sweet aunt is going with us to help watch Jude while we follow Ems itinerary. My family has been super helpful, my other aunt is watching Jude today while Mike delivers the boxes. I think she was excited because she is wanting to scope out the nurse to make sure she is okay.
I am off to work.
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2 comments:
Jenn,
You know Faith has very similar issues. Large amounts of siezure activity on the left and in the back but her seizures are almost entirely on the left side when she has them. One of the reasons they are presenting her at the seizure conference. No one has been able to explain it- ever. It's very frustrating for us, too.
Lovely picture of jude. Hope everything's ok. Just seen your status on Facebook. Will pray for u all tonight xxx
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