Thursday, February 18, 2010

Nursing, and smiles

Mike has been massaging Jude, and stretching his muscles out each day. Since doing this Jude seems to be more limber, and we are hoping this helps his reaching ability. He is using his left hand a lot more, but isn't reaching to grasp yet. He bats at my face, and swings his arm around a lot.

We heard today that Jude qualified for 20 hours of nursing a week, which is wonderful. The nurse will start Monday from 9-1, and this will help Mike. Due to his seizures, and the other issues we have been having the insurance company approved everything. Which means my personal insurance covered it, AND the Medicaid back up also approved it. We should also be getting an oxygen meter to monitor Jude during the seizures themselves. Now with that being said the nursing was approved, but we are jumping through some huge hurdles to get the Boost VS Pediasure, funny how that works huh?

I have sent off a large amount of Smile Boxes this week. We have new flat boxes, and Emily is spending time coloring each one of them, it's really cute! I am quickly beginning to realize that the demand for Smile Boxes is out running the supply. Even with Em's grant we will be falling short very soon. We have 250 boxes to put together to drop off in April per my prior blog. Now multiply 250 boxes times $7 a piece. See where I am coming from? That in addition to the large amount of requests we are getting to ship boxes. Also, we have kids in other cities, and states that are wanting supplies to drop to their local hospitals. It's so AWESOME to help out these kids, so I am hoping we get some corporate sponsorship soon. I am still waiting to hear back from the radio station, and I am hoping they don't forget about us.

So guess who can make Jude smile likes this?
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This girl!!! Em can always make Jude smile!

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Purple Quilter Queen said...

That's the greatest pic of Jude and Em! They both look guilty! So cute! Jenn

Sherry C said...

Sisters are the best. Jude is one lucky boy to have such a caring big sister.

gilda said...

So glad your finally starting to see some light at the end of the tunnel. I know there are probably more milestones to reach but,it was go nice to hear things are getting better for you. I will continue to pray for your family and that Emily continues to get sponsors for her smile boxes. Emily is such a great big sister!

Midwest Mommy said...

Oh that picture!!!! So cute!

jocalyn said...

yay for nursing! it may be a journey finding the right fit, but when you is soooo worth it!

Katy said...

You might also want to contact Oriental Trading Company or a toy store--maybe they could donate stuff for the boxes.

Candace said...

I am sure the funding for Emily's boxes will come...I love seeing them together. So cute!

Amy Genn said...

20 hours is a great amount of respite.

It will change Mike's have his life back a little bit.

Enjoy! I'm so happy for you guys!