Jude
Jude is not well. He still has not eaten, and his mouth is now lacking moisture. I am so angry with the doctor at the other hospital we visited that I could scream. I feel like this could have been avoided, and a simple IV of fluids would have helped me. They told me there that he was "borderline" dehydrated and his heart rate was very high, so why wait?? Now here we are and it's Monday, I have to be at work, and my kid is on his way to the hospital again. I talked to my boss, and I am leaving today, but I am still so angry. Maybe I am just using him as an outlet, but I am still upset, and so is Jude's dr. We are at a loss. Jude's pediatrician seems to think his refusal to eat is still because he is ill, and that once he has fluids he will eat again. I pray that's the case. I was a bit panicked when I called him this morning. He joked with me to ease the tension, and said I held it together so well all weekend. I told him that was true, but now I am really scared. He explained he doesn't think Jude is at the point of no return, and that the fluids will help. I am scared though.......something just isn't right, something is setting my mommy fears off. We are on our way in. I will update when I can.
6 comments:
We'll be thinking of you and praying for Jude's speedy recovery!
Praying hard here. Please let us know as soon as you know something.
I hope Jude will be feeling much better soon. Will be thinking of him, you, and your entire family today.
Hang in there lil man. I will be thinking about you today and praying that you get strong again.
Keep pushing the doctors...It wont hurt to see a new doctor either...
Jenn,
I am sending big hugs your way. I know you are scared, I have been down that road so many times. That first yr was aweful, I actually had one ped. in our peds office tell me just stop feeding her, she will give in eventually!! I was so mad, I called him an idiot to his face! I will tell you that although a feeding tube sounds aweful...it would make his life easier and yours too. I waffled w/ that decision for a yr, so many other parents w/ spec. kids said "Not my kid, no feeding tube" and that scared me! But when we did it it was the biggest relief of her whole life! It doesn't mean that he can't eat, it doesn't mean that he will have it forever, it doesn't mean that there is no going back to the way things were. It does mean that you can get fluids down him when you need to and can get weight on him, which does help them to develope, it does mean that you don't have to always be a "mean"mommy and make him swallow nasty meds(they just go down the tube), it does mean that you can still feed him. I am not a advocate per se of feeding tubes, but I see your agony and I can relate so well. I remember what a relief it was. The surgery is less than 30min., w/ Faith's we did not even make it to the waiting rm and they were calling us back, she was done! She was in the hosp. for 2 days, just to get us used to feedings and all the equipment and get the supplies delivered. But it was virtually painless! I do wish she could swallow and eat, but I take comfort in knowing that she is getting food in and isn't always dehydrated and low weight. PS you can also buy a blended food cookbook that shows how to blends certain reg. foods to run down feeding tubes, so they can get more normal things in their gut. I will be PRAYING for Jude and for you. If you want to talk privately, my email is faithann04@att.net
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