Saturday, May 19, 2012

Saturday nights and no boundaries.

Jude is doing much better lately. He has not thrown up since I posted about the incident he had in the early morning hours. He is also being really vocal. Although, he cannot form words and sentences he talks in "babble" and it's very cute. His chest bone is sticking out more prominent these days. The doctor's simply say "Wow that is really sticking out there". Sigh! They don't seem to be overly concerned about it though.

I have really been watching Jude work on crawling. He is so good at getting his booty up in the air and pulling his legs under him. I know he gets so frustrated because his torso and neck strength just do not match the rest of his body. Many people tell me "You just don't know what Jude can do", but the reality is I DO know what Jude can do. I know why he can do things and why he can not do them. I get it! He sure tries though and I think it's very courageous. The other day I was explaining to one of Emily's friends that Jude understands what he is talking to Jude about. Emily was listening and said "HE DOES?"...very surprised. I said "Well yes Em....can't you tell that Jude is listening to you when you talk to him?". She nodded. "He is a stroke victim Em. He knows what you are saying to him but he cannot relay what is in his mind.........and his body will not cooperate to do what he wants it to". I saw her trying to wrap her brain around what I just told her. She just said, "that must be frustrating".

Jude and mom are going to hang out together and watch movies tonight. It's a perfect Saturday!

3 comments:

Joy Roberts said...

Hello!I am just coming across your blog and I am enjoying reading about your journey. I have a journey as well. My daughter, Lily, had several strokes and I also maintain a blog. You can read her story at lilypadspl.blogspot.com. Do you mind if I share your blog on my page as well and with a group I am part of on facebook? I am truly inspired by your story and will keep your family in my prayers.

Joy Roberts said...

Hello! I am just coming across your blog and am enjoying reading your journey. My daughter, Lily, also had several strokes in utero and I maintain a blog about her progress. My blog is lilypadspl.blogspot.com. May I share your blog and story with some support groups I am part of and with my blog followers? I will keep your family in my prayers.

Joy Roberts said...

Hello!I am just coming across your blog and I am enjoying reading about your journey. I have a journey as well. My daughter, Lily, had several strokes and I also maintain a blog. You can read her story at lilypadspl.blogspot.com. Do you mind if I share your blog on my page as well and with a group I am part of on facebook? I am truly inspired by your story and will keep your family in my prayers.