It's Saturday and I am sitting on the bed typing my blog as I watch Jude sleep. It took awhile for him to go to sleep today, because he kept having spasms that were waking him up. I held his paci in his mouth as he occasionally twitched, and he finally drifted off to a deep sleep. Other than that circumstance it's been a nice day of relaxful times. We get Emily back tonight, and I am so excited about that. I know she is ready to us, and we are ready to spend some time with her.
Relaxing for me can include cooking. I enjoy baking nice treats for my family, and it's my way of unwinding. This morning I made homemade banana nut bread, and Zucchini bread from scratch. When I pulled the Zucchini bread out of the oven I received a rather spicy smell, and it threw me for a loop. Suddenly I felt like Homer Simpson and the word "D'OH" escaped my mouth. My cinnamon, and cumin are in the same type bottle, and it was obvious I had used the WRONG BOTTLE. I sighed, and threw the bread into the trash. Luckily the banana nut bread was not harmed by my cooking nightmare.
Jude went to see the pediatric eye doctor yesterday, and she was very nice. She said she noticed Jude's left eye is becoming lazy, and rolling down. Therefore, we have to patch his right eye to try to get him to use his left eye more. Jude's stroke was worse on the left side so I am assuming this is the cause of his current situation. So he has cute "boy" patches for his eye, and we will start this soon. In fact I may put the patch on while he is sleeping so there won't be a protest. She also marked him "legally" blind on all his paperwork, but this is more of a call for therapy vs a permanent diagnosis. The hematologist had noted the day before who Jude "recognizes" us and turns towards us when we speak. She also noted how he will look directly at our faces, so I see some hope for his vision.
To our great surprise we received 4 donations for Emily's Smile Boxes today, and this made me so happy. I called Emily to tell her about it, and she was so thrilled. I explained to her that I had located a shelter in Dallas that houses abused children. Since abused children are a subject close to my heart I asked her opinion on adding them to the Christmas box list. She was all for the idea, and said "That would be great mommy". I know it seems I take on a lot, but honestly I have whittled my load down to work, home, and smile boxes. I make time for my friends when I can, and I have gotten the courage to say "I am sorry, but I cannot make it" to events. I try not to overload our schedules, and I focus on what's important. To Emily, and I the smile boxes are very important. Maybe they are an outlet for grief, but it's a good outlet. As a child I always wanted to help other children, and due to my daughters idea, we are now able to accomplish this. I so enjoy it, and I only hope it grows into a large non profit empire where we can ship these boxes to all the children's hospitals in the nation. It's a lofty goal, but one we are working towards. Emily cannot wait to hold her "smile box making party" for her Christmas boxes.
So I pulled my normal demanding self routine with a friend of mine who's daughter also had a stroke. I feel bad because I kept texting, and emailing her talking about day to day schedules. She was going through a time where she just needed a break from life for a bit, and bad Jennifer hounded her. So please forgive me, I have a tendency to do this when I worry about others, and wonder what I did. Everyone needs a break, goodness knows I take one every now and then. It's needed!