So the neurologist called and basically they want to admit Jude. His nurse said that one of the diagnosis they are focusing on is Postural orthostatic tachycardia syndrome http://www.cardiachealth.org/postural-orthostatic-tachycardia-syndrome-pots .
They want us to either go in to clinics on Thursday and admit Jude through there or go through ER. Then he will have a host of tests done. We aren't sure we want to do this yet. So I am going to go home and we will talk about the best course of action. I do have a call into Jude's other neurologist at Dallas Medical City to see what he thinks.
So I MAY be looking for someone to sit with Emily and Jude Friday at Cook's. We will see. Emily also has a plethora of appointments on Saturday that I may be calling her dad in to help me with. Should be interesting making the poor guy sit through a hair and eyelash appointment........he might want to claw my eyes out after.
2 comments:
POTS is dysautonomia....a common issue in kids (people) with mito!
I told my husband that same thing. I said of everyone you were probably the one that was correct!
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