Jude's oxygen level kept dipping again last night. I have no idea what is going on with that. I try not to put to much stock into the machine, but it's obvious it's not a mechanical glitch. His heart rate stays elevated and when you turn him the oxygen stays about the same (low). So it's not a connection issue. It took us about another hour of situating him to get him to a stable level and he drifted off to sleep. What does this mean? No clue! I don't think it constitutes an emergency or panic it's just something else to watch. I put a call into his pulmo just to let them know. He doesn't need oxygen to eventually get him stable so maybe it's a baclofen issue or something residual from the surgery.
People ask me how Jude is. I have literally gotten to the point that I don't know how to respond so today I just started replying "a mystery, but happy!". I think that sums it up. He isn't in the hospital, he is happy, but there are issues we are watching.
I just sat on my bed this morning when my alarm went off for work. I wondered why people in situations like ours cannot magically find the money to pay off their mortgage. If I could do that I could STAY HOME. Then I kicked myself in the ass and reminded myself I should be really thankful I have a job. I drug myself out of bed, didn't fix my hair, threw on my clothes, kissed my kids goodbye, and ran out the door.
1 comment:
Is he laying on his side? Reagan's O2 always drops substantially when she's laying on her side (or has her head tilted to the side). She'll go from 99-100 to 90-92 just like that! I don't know why that affects her breathing so much but it does. As far as staying home...it doesn't really solve any of your problems!! I still get up at 6am and wrestle my toddler all day long and worry that I'm not spending enough time with Reagan! It's a stressful life!!
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