Charlotte, Jude's nurse called earlier, and Mike broke the news to her that the nursing has been suspended pending the appeal. She was said, BUT she does have a friend that needs help for the next six weeks. She also said she wasn't very happy with the provider we have been using, and we are both talking about finding a new place together. In addition she said she was very surprised they cancelled the service because of how needy Jude is. We just ordered the pieces for the suction unit, and hopefully she can stop by to show us how to use it properly. Anyway, I also followed Jocalyn's suggestion and called respite about increasing our hours to subsidize for the nursing. They were very nice, and said it very well could be possible. We still need to make the appointment to see the doctor about the G button. We have to schedule the surgery, but like I said we are trying to push the surgery to the middle of May if possible.
I appreciate everyone's nice comments, and advice this past week. I felt so negative with the emotional comments over, and over. Although, I always promised to be honest in my posts. I am off to take Em on a walk, enjoy your weekend.
8 comments:
Those pictures of your boy are stunning! He is such a good looking kid! Feel better Jude! Hugs & kissess from California!
ps. Even parents with so called "normal" kids can get quite negative. Motherhood is just plain taxing sometimes :) I for one appreciate your honesty......
Darn, Jenn. I know that must be frustrating for you guys! BTW...I like Jude's hair longer the best. I love his little bangs and the way his hair lies....BEAUTIFUL!
Oh those pictures are adorable!
Those are wonderful pictures of Jude. I hope Jude starts feeling better!
Those are beautiful photos!
Glad things are starting to get a little better w/the little guy, hopefully the weekend went well.
I absolutely love the new pictures of Jude! Mike is certainly talented, but he has a magnificent subject.
Love,
Parker and Amy Hendrix
I am in love with those photos. Amazing.
Such beautiful photos. I just love your precious boy.
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