Okay, Mike faxed me the information on the drug. I hate information sheets on drugs with everything in my body, don't you?
It's called Felbatol. It's very effective for seizures, but it's effective as an add on drug with other medications.
This is my concern:
"Unfortunately a number of fatal cases of a plastic anemia, and hepatitis have been linked to this medication, and most physicians only prescribe it when other treatments have been ineffective. The most serious side effect is anemia, and liver failure." They suggest blood tests every two weeks to start, and then every three months following. The dug can also cause less serious effects like insomnia, and headaches.
I guess there isn't a seizure medication that comes without risks, but I wish there was. I am sure they give you the worst case scenario, but still. So the big question is do we really want to walk down this medication path. It's the old question, is it the disease that kills the child, or the fight from the parents seeking normalcy that kills them? GEES! To much for my brain to take in.
Mike and I will be discussing the pros and cons tonight.