I don't even know what to say or post anymore. He is coughing, not urinating, running a fever, is toned out. Among other things. I am not sure if this is something new, Baclofen withdrawal (still), side effects of oral Baclofen, or what.
I hate Baclofen. I hate the Medtronic pump.
I want our lives back.
5 comments:
So sorry to read this news. Will be thinking of you, Jude, and your entire family. xo
I read every day and cry for Jude. He is a true warrior prince! The doctors have talked about putting a baclofen pump in our boy also, but I refuse! After reading what is happening to Jude, I'm even more convinced. So sorry you have to go through this. Words feel empty and stale, but I truly feel your sorrow in the depth of my heart. All the best to the whole family from Sweden ❤️
I've been reading every day and keeping Jude (and you all) in my prayers. I'm so sorry that Jude is dealing with this! Such a sweet little boy shouldn't have to fight so hard. Stay strong and remember that people whom you've never met, are sending lots of prayers your way!
~Joanna
aka "smilinjo" over at
travelswithtessie-toodles.blogspot.com
So sorry to hear. Hope this stay turns things around for everyone.
Thinking of you and hoping things get sorted out really fast :o). Sending you lots of good vibes from the far north!
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