Monday, April 28, 2014

The pump

I had to put the call into Jude's Dr today about the Baclofen pump, but before I could call a neurosurgeon actually called me. The nurse said Jude was sent as a referral for the pump and they were setting up the consultation. The consult has been scheduled for 6/4. Makes my stomach turn, but I know that's based on emotion vs. what I know needs to be done.

The surgery itself has been tentatively set as well and it throws a HUGE wrench into some plans I have made. It's one of those bitter sweet moments because it works perfectly with my schedule for work, but I may have to cancel something very important. I don't want to get into to many details until we figure this out and I contact the parties that need to know first.

I have felt teary all day today. First, because I know this surgery is looming and it makes me sad. I know this will bring Jude a lot of relief, but I feel terrible he will be in so much pain at first. He relies on us to keep him safe and he doesn't understand when he is hurting. Second, I have been insanely busy at work. I think my boss felt sorry for me because he brought cookies back from lunch.

Emily's pageant went well and I will post more on that tomorrow when I have the time and hopefully am emotionally stable.

1 comment:

Anonymous said...

To Jude's family,
I just wanted to see if I can be of any help. I am getting my pump replaced for the third time on June 2nd. I am actually a former patient of Cooks. I got my first pump at 16, I am turning thirty on Saturday. I have Spastic Diplegia
CP. If you have any questions my perspective could answer. Leave a comment and it would be my pleasure to respond.