Monday, January 19, 2009

Damn Seizures

Well I am back to that distasteful expression... "damn seizures!". Remind me not to blog again about how under control they are getting because that seems to bite us in the booty. Jude had the worst seizure I have seen him have last night. Before the seizure hit Jude and I had quiet time together, and were having the best time. I literally sat on the couch talking, and singing to him for hours. We played, and he truly looked like he was responding to me. His eyes were so bright, and full of expression. Suddenly Jude's body started shaking like he was reeving up for something. This is a new move and something I wasn't used to so I panicked a bit wondering what he was going. After the shaking Jude went into a full blown audible seizure. I felt so sorry for him, and my heart ached! Mike rushed down from his game room, and helped administer the Klonnopin to Jude. I am thinking that Jude got over tired because he was fighting going to sleep, and this seizure was after his medications. So we then woke up this morning about 7:30 to him having another seizure. UGH!!!!!! Right when you take a step forward you then take three steps back. Seizures are such a strange situation, and so very hard to control. In addition to the seizure last night I explored Jude's eyesight a little more. I lifted him up to the light like I had done in the past, but this time he did not squint. Although, I think I may have done that incorrectly because when Mike tried Jude did squint. I also got my hand very close to his eyes, and he did not blink. In addition to that I put his bottle right in front of his eyes, but it wasn't until I touched his lips that he reached for it. So I am not sure, and this is something I mentioned ECI wants us to get checked out. So I put a call into the doctor to get a referral to a pediatric opthamologist.
With all this going on with Jude I have started waking up in the middle of the night to check on Emily more. I guess I have a true fear of her getting ill, and I need to work on controlling that. Anyway, this weekend Em came and hopped in bed with me, and Jude joined as well. I am still amazed at how Jude responds to Emily. It's childlike, and so innocent and it's almost like Jude knows how to communicate with her. When they are together you don't see any issues with Jude, and she can bring so much out in him. In fact in these pics I almost see a smile! {If you are reading this on Caring Bridge please access my blog to see pics}
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I found this quote and I love it; "Instead of comparing our lot with that of those who are more fortunate than we are, we should compare it with the lot of the great majority of our fellow men. It then appears that we are among the privileged. Helen Keller "

Here is a pic of Mike and I out on Saturday. It was so nice!
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Lori said...

He is so beautiful & I definately see his smile. Your family is such an inspiration.


andrea said...

I love the way jude smiles with em. i see the smile from the inside out.