I was going to update earlier but I got busy and now I am super tired so if my blog doesn't make sense at some point you know why. So I have been to the ER twice, my personal care doctor twice, and I have now been sent to a neurologist. Here is the latest update (drum roll)......... no one knows. what the heck is wrong with me and it's frustrating. However, they're trying and I just have to have patience.
The second trip to the ER resulted in a diagnosis of probable Lyme disease and they put me on painkillers and Doxycycline. I can say that I took my 5th dose today and I do feel some better. It was rather comical because the Infectious disease doctor at the hospital challenged the ER doctor and said Lyme is not in TX. She disagreed and put me on the medication anyway primarily to start eliminating issues. She specifically said, "You have something serious and we know it's serious and it's time to start treating symptoms to eliminate possibilities", smart doctor. I still have an excruciating headache, earache, ringing in my ears, and fatigue. However, the fatigue has subsided enough to where I feel like I can last longer at work so she might be on to something. The ER sent me home with instructions to see the neurologist and an Infectious Disease specialist.
The neurologist, sigh. First off I loved her nurse but the doctor's bedside manner was a bit standoffish. She listened to my afflictions but any time I got to something she wasn't comfortable with she would reply, "I am just a neurologist". After the 6th "I am a neurologist" I replied, "I know you are a neurologist I am very familiar was with a neurologist does." She replied, "oh so you have seen one for this before." My reply? "No, I had a very sick child for years who required frequent trips to the neurologist for his issues until he was placed on hospice". I said, "I know that the headaches, dizziness, ringing in my ears, facial issues, and more are all things that can be handled by a neurologist but at this point, each doctor keeps telling me I am beyond their complexity or they don't handle certain parts of this." Her demeanor then seemed to change and she began listening more and began the examination. She said she does NOT believe I had Bell's Palsy or Ramsay Hunt so she and ER doctor #2 concur. She said if it's Lyme it's far beyond her scope of education and that Lyme is an issue here Texas despite what the infectious disease doctor said (she laughed about his response). She said she believes I have a droopy eye which means something affected the muscle and the nerves in my face. She believes this was a "nasty" virus and it may have attacked my brain and she seemed frustrated the ER didn't complete and MRI. So I have a contrasting MRI tomorrow at 1:30pm......I hate MRI'S and I am already dreading it. If it's an emergency they'll obviously call but if it's not I will find out if anything showed on the MRI at my next visit.
As previously stated this has been very challenging for me. It's one thing to not want to get out of bed in the morning but to not be able to get out of bed is a whole different mind blowing situation. It can certainly wreak havoc on your psyche and I admire those that deal with chronic illnesses without answers and chronic illnesses in general. I know everyone is concerned and that's why I wanted to update as a whole.