Jude is having very rough evenings lately. We are seeing an increase in seizures and rigidity, a decrease in oxygen, and an increase in crying. This resulted in a stressed nurse and more this weekend. Luckily last night he was a bit better.
We really aren't sure what's going on with Jude. It's always a question on if this is something neurological, or if Jude is getting sick, or just deteriorating further. We have an RN that comes on the weekend and she believes he is getting ill so does our regular night nurse. He still ran an intermittent fever throughout the weekend so we will see.
Mike and I are going to take a little weekend trip away at the end of March. I think we need a little time together.