Last night I gave Jude Motrin in addition to his other medication before he went to bed. It seems that added medication helped him sleep, all night long! He only fidgeted once, and when I straightened out his legs, he went back into a deep sleep.
At night Jude pulls his leg up into a W, and this can become painful. We consulted our PT who informed us that this is very common with CP children. She said that since there is no pressure on their feet from walking they have a tendency to pull up their legs. When they do that they keep the bone from forming properly around the ball of the other bone. This can eventually cause hip dislocation. Our PT is getting Jude fitted with orthotics, but I think we might need to take him to see a doctor.
The neurologist called back about Jude's seizures. He said he is surprised to hear that the spasms decreased, but the large violent seizures increased. He explained that he normally sees the opposite when administering Felbatol. Therefore, he is increasing the Felbatol prior to Jude's appointment Tuesday at 10am. He will have his blood drawn that Monday to test for medication levels, and the doctor will check those levels at Jude's appointment.
We will see what the weekend brings with the increased dosage.