It was another hard night. I was up nine times with Jude when he would cry out or fuss. Mike was up a few times too. It took everything I had not to call into work today and trust that I laid there debating on calling in several times. I am certainly hoping that the care team talks to the doctors and comes up with a plan for sleep. In the meantime I am going to hunt liquid Melatonin. We used to crush the pill and give him that at night but despite our best efforts it would always clog the G button. Since the Felbatol eats the G button (scary thought) then the powder will just eventually clog it up.
I feel like I am losing it a bit lately. I am sure it's exhaustion that is causing me to feel this way. Anyway, let's hope for a better week. The good thing is I did get a few smiles last night from Jude in between his attacks. It was nice to hold him for a bit and to see his grin.