I have felt a little out of sorts lately, but I think it's because I am so tired. I would love to go on a vacation with Mike and just spend some alone time with him. I feel like we are always rushing, working, and dealing with illness issues. I also had a conversation with Emily last night about the need to make friends outside of a boyfriend. Emily lacks for nothing, but through our conversation I did realize she is missing out on social activities because of our situation. I know this will change when she is able to drive. I just cannot get her many places after 5pm. Again, she lacks for nothing, but I guess I hadn't realized our life had impacted her. We always strive to keep her involved with others.
I set up an impromptu party with some friends. It's better if we have people to our house so I can watch Jude there. Hopefully people can make it because I think Emily and I are both in need of social time.
We go June 4th for Jude's neurosurgeon consult about the Baclofen pump surgery at the end of the month. I am anxious to see what the doctor says about the procedure.
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