Jude has been dealing with a chronic cough for the last month. I figured this may be related to either the empyema or his chronic lung disease. We tried to treat the cough for two weeks with breathing treatments and CPT, but then we gave in and went to urgent care. They stated they believed the cough was due to a sinus infection that was causing drainage and therefore made Jude cough. However, after a round of antibiotics the cough is even worse. Jude cannot sit up straight without coughing so hard he vomits.
So I called Jude's pulmonologist yesterday and explained all the symptoms and information. Since it's now been a month they put him on steroids and increased his breathing treatments. They also said it's okay to keep him at a 45 degree incline like they would in the hospital. It wasn't a good night because Jude woke up coughing several times.
Jude's oxygen level in his blood is good, his color is good, and he is still smiling which are all good signs. However, this cough is awful. I am wondering if other special needs moms could provide any information they have on chronic lung disease and how you have dealt with it. When did you start to notice it was getting worse? This issue concerns me and I am hoping the steroids will work for Jude!
Also, we got some bad news regarding the bathroom conversion. I am so irritated by it that I can't even blog about it yet. I just have to try to find a solution.