Jude has another appointment at the hospital on Friday at 11. Basically the feeding tube is hard to push again and last night his belly was distended. He was crying on Monday but he is much better now and smiling. The doctor said if Jude gets worse it's an emergency and to get to the ER immediately. I hate Jude has had to go back to the hospital so much because that was never out intention. We wanted him to be in peace at our home but we cannot allow him to be in pain.
My guess is they will remove his current feeding tube and put in a G button again. I never thought feeding issues would be such a problem with Jude again. Nurse Charlotte has marked Jude's stomach and is keeping track of any swelling.