Tuesday, February 26, 2019

Update On Emily And A Hard Weekend

I have been mulling around the words for this blog today but I am having a hard time properly articulating the exact emotions I am feeling. I worry about sounding down, defeated, or brimming in self pity. Honestly though I don't really care how I sound anymore because I am at my wits end. I haven't been very talkative today because I am processing all the thoughts I have and evaluating what's important in life. So I cannot handle bad news today or honestly much chit chat so forgive me if I am not answering you, I will. I talked with Em prior to posting this so she is on board with people knowing what's going on. I just ask people to refrain from texting or calling her because she is overwhelmed.  We have been hit by what seems like an endless cycle of tragic or stressful circumstances and each time one strikes we find a way to keep marching on. A sign that hangs in our house is, It's not about waiting for the storm to pass it's learning how to dance in the rain. However, sometimes the flooding from the hurricane is just too much. Sometimes it just takes a huge toll. 

On Saturday Emily called me and said she was being taken to the ER by her friends. Keep in mind Emily is in Tusacaloosa at school. I basically said, "What why?" I knew she has been having issues with the problem I referenced in my prior blog and has been very ill for weeks. She said her blood pressure was reading high around 145/85 and she had a high heart rate. She also mentioned her heart felt like it was fluttering. Having dealt with Jude's medical issues this is how my brain works in order....

High blood pressure - Probably anxiety
High heart rate - Probably medication related
Fluttering heart - concerning but I have heart palpitations so it could be hereditary, could be medication, could be multiple items. 
Hold it together mom and be calm on the phone. 

So I tell Emily to contact me once she reaches the hospital. A few minutes later she calls back and says when she stands up her heart rate soars over 150. Call 911 Em, and she did. They got her to the ER and thankfully most everything checked out normal. Her thyroid was off which was the issue from the start, she was having a panic attack from feeling so terrible, and side effects from the thyroid medication. So they released her knowing she had a Endocrinologist appointment yesterday at 11 am. However, prior to releasing her I was researching flights trying to get to Alabama because I had enough of being so far away from Emily while she felt so terrible. Mike talked me off the ledge and when the standby flights turned red I explained to Emily I just wasn't going to make it on a flight. 

Fast forward to her specialist appointment. I had an event in Dallas yesterday so when Emily called I excused myself and walked in the other room. She was crying.........like trying to find her voice crying and I was once again scanning scenario's in my head and wondering WHAT was happening. So she calmed down and said she was diagnosed with Hashimoto's and then she informed me they found a nodule on her thyroid. They said there was a slight chance it could be Thyroid cancer but it's rare. For a minute the world seemed to spin and I muttered something to Emily who promptly reminded me she was calling ME to calm HER down. Of course of course I said and then asked what the next course of action was. They will do a biopsy of Emily's thyroid next Wednesday and they put her on new medication for her Hashimoto's. To do the biopsy they will insert a needle into her neck into her thyroid. Right after my call to Emily I called Mike who was now standing on the ledge with me in full force and also talking about flights. 

Emily then took paperwork from the school to the primary campus health department to have them fill it out for a type of college "disability." Which basically just means she's been dealing with an issue that has made her miss classes (keep in mind she made the Dean's list with this mess) and they will work with her professors regarding absences as long as she completes her work. The lady at the healthcare center must have been having a bad day because she was extremely rude to Emily. It's hard letting go of your children sometimes because the Mama bear in me wanted to call the department and professionally explain that their job was to make her situation less stressful not more stressful. College's wonder why we have issues with mental health. Anyway, I encouraged Emily to email the doctor directly and explain the entire situation and ask for help. She assured me she would do this. 

Here is the reality. 90% of these nodules are benign and I have no doubt Emily's will be too. I have no doubt that this is simply being caused by the Hashimoto's.  With that being said statistics can sometimes grate on our nerves with our family as a whole. Every time someone gives us a statistic we tend to be in the 10%.  We are literally the, "You have got to be kidding me." elephants that are in the room with everyone. That is the best description I could come up with. There really isn't much to say......we know we will get through this, we know not to let it get us down, we know it could be worse and we know all the other words of encouragement anyone can offer. The reality is we have faced many situations and they didn't turn out well so we are staying very positive but are still a bit scared so we have asked for lots of prayers.  People might just have to bear with us while we are a bit angry for a bit, I am sure it will pass soon. Emily is young and shouldn't be dealing with this and our family should really just get a pass on a child being sick. Once we get over being upset we will march forward yet again. I am quite sure Jude is helping us every step of the way and holding his sister's hand for sure. She is the one dealing with this head on and as usual she's amazingly strong. Emily has a resilience like no one I have ever seen and a great heart. 

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