A quick little update

Sorry I haven't blogged I have been a bit overwhelmed at work. Jude is doing about the same as he was. He has good days and bad days and the same goes for the nights. His oxygen is still presenting issues and he is running consistently at about 5 liters and up now. Our weekend night nurse said she believes Jude's diaphragm muscles are growing weaker due to all the coughing. However Jude is still smiling and is still fighting and he may be with us years to come. 

Mike and I are both feeling a little claustrophobic in the house. I think this is a natural reaction and we will figure it out. 

I hope everyone is well.