We are here, and Em is currently jumping on the hotel bed. Jude is in the other bed watching her, and giggling. We had a great time last night catching up with our old friends Cristina, Michael, Valerie, and Dane. We ate great food, and toured the hotel.
Although prior to that we had met Anna for lunch, and it was a wonderful visit. We talked a lot about her loss of Katy, and it just broke my heart. She also explained why children who cannot walk, etc eventually have organ failure. She put it in a way I could relate to, and understand. Mike and I both explained that we understand our time with Jude may be limited, so we are grateful for everyday. It was comforting having someone to talk to about issues we can understand. We get comments that we shouldn't ever discuss losing Jude, or him not walking, but it's also reality that this could happen someday. We don't like to think about it, but there is no shame in saying we are thankful for every day we have Jude. I then pointed out to Mike that we should be thankful for everyone in our life regardless of special needs, or not. You just never know. Anna and her daughter were so nice, and gave Emily a little necklace to wear this weekend. I think Emily really took to Anna.
Today we set up Emily's smile box table, and my scentsy table. We register Em at 2, and then she competes in "commercial" tonight. They give you the choice of commercial, or talent and Emily chose to do a "Emily's Smile Boxes" telethon. I thought that was pretty cute.
Jude is doing fabulous, and has already eaten 8 ounces of Boost today.