I Post A lot On Social Media

It's true. You just laughed because you know it's true. I am sure over the past few years I have had people unfollow me by the dozens on social media. It could be because I post to much, my posts are sometimes sad, or because I speak my mind. Either way my social media depicts who I am and I am proud of the person I have become.

Throughout Jude's life we were so blessed to watch him grow but the older he got the more confined to home we became. I grew very fond of the situation, so much so that I still am very much a homebody. When we got off work we had to go straight home to relieve Jude's nurse and get ready for his nightly medications and rounds of therapy. We did this for years until we got a night nurse and even then we still had to be home at 5 until the 10 PM nurse clocked in.  This also applied to the weekends. We had a set regimented scheduled that rarely deviated off course unless a special occasion arose but it's one we loved. We enjoyed being with Jude and watching him grow and snuggle him in our arms. However sometimes as special needs parents we felt rather disconnected with the outside world. I tuned to social media on a regular basis to admire the photo's and updates my friends and family posted to various social media outlets. I felt connected to my friends and family by watching their updates and adorable pictures. I laughed at your adorable Halloween costumes, I smiled at birthday milestones, I cried at the first heartbreak, and I felt your sense of pride at graduation. I felt like I was there with you even though I wasn't physically. I still have issues connecting sometimes but I appreciate all the times you allowed me to be involved from a far.

So yes I post on social media a lot sometimes and so do many other special needs moms but don't you see that without that connection we would have been alone. So thank you for your patience, your understanding, and your ability to share. It's both refreshing and appreciated to not be judged and allowed to be a part of something special.