I don't even know what to say or post anymore. He is coughing, not urinating, running a fever, is toned out. Among other things. I am not sure if this is something new, Baclofen withdrawal (still), side effects of oral Baclofen, or what.
I hate Baclofen. I hate the Medtronic pump.
I want our lives back.
So sorry to read this news. Will be thinking of you, Jude, and your entire family. xo
ReplyDeleteI read every day and cry for Jude. He is a true warrior prince! The doctors have talked about putting a baclofen pump in our boy also, but I refuse! After reading what is happening to Jude, I'm even more convinced. So sorry you have to go through this. Words feel empty and stale, but I truly feel your sorrow in the depth of my heart. All the best to the whole family from Sweden ❤️
ReplyDeleteI've been reading every day and keeping Jude (and you all) in my prayers. I'm so sorry that Jude is dealing with this! Such a sweet little boy shouldn't have to fight so hard. Stay strong and remember that people whom you've never met, are sending lots of prayers your way!
ReplyDelete~Joanna
aka "smilinjo" over at
travelswithtessie-toodles.blogspot.com
So sorry to hear. Hope this stay turns things around for everyone.
ReplyDeleteThinking of you and hoping things get sorted out really fast :o). Sending you lots of good vibes from the far north!
ReplyDelete