tag:blogger.com,1999:blog-8581317431133132518.post8073023837068127363..comments2023-07-25T06:31:22.641-05:00Comments on Jude; The diary of a baby and a stroke: Can I get a hooray for sleep???Jennifer Ortizhttp://www.blogger.com/profile/14350225247489608653noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-8581317431133132518.post-85817685195308528902011-02-26T00:54:20.111-06:002011-02-26T00:54:20.111-06:00I am glad that you got some sleep. Sleep deprivat...I am glad that you got some sleep. Sleep deprivation is one of the worst things to deal with - it is a form of torture. And to have to deal with all you and Mike have to on top of lack of sleep - it is no wonder he is struggling. I hope that some of the things you are researching will help Jude (and you). I hope that Mike will be able to get a job soon. If you could have a nurse care for Jude, and Mike could be out working, it would be so much better - especially for Mike. Having to cope with the special needs of a child as part of a job (where you go home, eat, sleep, play) as opposed to it being a 24/7 role, even if there are times you are 'off duty' is no comparison. I know that in our case, the constant being 'on call' has taken a huge toll on our whole family. (Our 8 year old is in palliative care, with a terminal diagnosis. Thankfully, she does not vomit.) I have found (as I am sure you have) that having a break from that constant caring is vital to keeping sane, healthy and coping. I am sure that you going to work each day makes it easier to be with Jude when you come home. It is not about whether or not you love your child. It is obvious that both you and Mike adore your son. But we all need a break from the constancy of our roles. I hope that there is some solution for your family; both for Jude, as I am sure that the constant vomiting is upsetting to him as well, and is not good for his health, as it is for Mike. Your pride in your daughter and her achievements is obvious. She and Jude are indeed precious.Ian & Rubyhttps://www.blogger.com/profile/02172198678278619934noreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-76307353782573584842011-02-25T13:09:03.177-06:002011-02-25T13:09:03.177-06:00I love that there is a Scentsy warmer in the backg...I love that there is a Scentsy warmer in the background!! LOL!x o x o u ihttps://www.blogger.com/profile/09519105373985656600noreply@blogger.com