tag:blogger.com,1999:blog-8581317431133132518.post4559959707683809222..comments2023-07-25T06:31:22.641-05:00Comments on Jude; The diary of a baby and a stroke: Neurologist updateJennifer Ortizhttp://www.blogger.com/profile/14350225247489608653noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-8581317431133132518.post-21237074410409092242010-03-12T23:48:51.697-06:002010-03-12T23:48:51.697-06:00I know this post was more about meds than Pediasur...I know this post was more about meds than Pediasure but I just wondered if until the insurance will cover the Boost if you could add carnation instant breakfast to the Pediasure. It will add something like 150 calories without changing the consistency of the drink. BTW, do you go to Cook's or Children's for your care? If you do not already have a good GI doc and use the Cook's system, we use Dr. Ogunmola at Cook's and he is FANTASTIC!!!!Jamiehttps://www.blogger.com/profile/07094218998879302000noreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-14862515151585207492010-03-10T08:55:16.426-06:002010-03-10T08:55:16.426-06:00I love the picnic idea! I wonder if we could get t...I love the picnic idea! I wonder if we could get the Lion's Club involved?Sarahhttps://www.blogger.com/profile/04023165559371356156noreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-5581504621828795082010-03-09T16:41:42.421-06:002010-03-09T16:41:42.421-06:00Jenn, your post today helped me remember not to ta...Jenn, your post today helped me remember not to take anything for granted. My 10mth old son,Omar is constantly getting into everything since he is crawling and pulling himself up. And just the other night he broke a glass picture frame which should have been out of his reach in the first place. I was not upset because it got broken I just simply picked it up and trashed it. I am at loss for words for your feelings about little Jude limitation to his mobility and development. I can say is Jude is so special and has won the hearts of so many as myself just by his gorgeous eyes and smile. God always blesses us with our children and Jude is truly a great blessing to know him through this blog. My thoughts and prayers are always with you.gildanoreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-3620975831446735182010-03-09T16:38:08.898-06:002010-03-09T16:38:08.898-06:00if its sabril (vigabatrin)...I have 3 bottles of i...if its sabril (vigabatrin)...I have 3 bottles of it you can have. we ordered it from canada before it was FDA approved, and then Kendall got off it to start the diet. it is super expensive.jocalynhttps://www.blogger.com/profile/07313874191250865765noreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-39205493241770733252010-03-09T16:15:44.691-06:002010-03-09T16:15:44.691-06:00Is it Sabril? I know some families that have been...Is it Sabril? I know some families that have been very happy with that. Other families I know have had to go on to ACTH or another steroid. I do hope they can find something to help little Juders. I DO think he's learned some stuff recently, though--I mean, he learned cause and effect recently which is huge. <br /><br />I think a picnic sounds like a great idea!Katyhttps://www.blogger.com/profile/02189007616883663434noreply@blogger.com